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Patient Stories
Osteoporosis – the Human Cost
Here, osteoporosis patients from around the world tell their stories. These personal histories illustrate the human cost of osteoporosis, showing how osteoporosis progresses silently and, if not diagnosed early enough, can lead to painful and debilitating fractures. For many, everyday activities that are previously taken for granted become impossible and "quality of life" takes on a new meaning. Yet the stories also show that there is hope. Various forms of treatment are available to help halt progression of the disease. And, as shown in several case histories, early diagnosis made, or could have made, all the difference.
Osteoporosis advocates speak out
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“There is indeed one thing I have learnt – that an accurate diagnosis, which is relatively simple, can save women from a lot of suffering, fractures and emotional damage.”
Carmen Sanchez, osteoporosis patient from Spain, speaking at an IOF press conference held in Brussels
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Women with osteoporosis- Layla Audi, Jordan
- Margaret Austin, New Zealand
- Sarah Berrecket, Israel
- Jintana Bounsombat, Thailand
- Celia Marcela Casals, Argentina
- Bonnie Daue, New Zealand
- Renu Dhall, India
- Gonul Erdinc, Turkey
- Inese Ergle, Latvia
- Anne Glossop, UK
- Gottschalk-Schmidt, Germany
- Rima Hamdan, Lebanon
- Roswitha Horn, Austria
- Salima Ladak-Kachra, Canada
- Gail Lemieux, Canada
- Inger Lundegaardh, Sweden
- Marie-Lynn Majdalany, Lebanon
- Valentina Ninova, Bulgaria
- Sara Padilla, Costa Rica
- Danuta Pauk, Poland
- Ms. Claire Peach, Australia
- Randa Rabie, Jordan
- Carmen Sanchez, Spain
- Ciara S., Ireland
- Carmen Solis, Peru
- Maria T., Bulgaria
- Elisabeta Veres, Romania
- Anne Wong, Hong Kong
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Men with osteoporosis- Sergio Barrientos Arellano, Mexico
- Domingo Di Lorenzo, Venezuela
- Nicholas Flood, Ireland
- Ram Gulam, India
- Dan Martell, USA
- Ernst Mueller, Switzerland
- Mike Nelson, UK
- Jouko Numminen, Finland
- Wolfgang Orthuber, Germany
- Leu Yid Pin, Thailand
- Ovidiu Poclitaru, Romania
- Robert Reese, UK
- Jamal Saleh, Bahrain
- David Tomlinson, UK
- Andrew Wishart, Australia
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If you have osteoporosis we invite you to share your story. Please write to IOF's web-site editor
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OSTEOPOROSIS ADVOCATES SPEAK OUT
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"I have had osteoporosis for ten years and am urging all women in my situation to seek advice from their physician and local patient group on how best to stay on their treatment. I am aware of the profound impact the disease can have on everyday activities and while I have been fortunate enough to continue leading an active life, many women are not so lucky."
Britt Ekland, Film Star
Read more quotes
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STOP THE STOOP ANIMATION
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The STOP THE STOOP animation and visual shows the devastating consequences of untreated vertebral fractures based on the case of a typical patient who does not take appropriate treatment and has eight vertebral fractures in a four year period. As a result, she may lose up to ten centimetres in height and may suffer severe chronic pain from the curvature of her spine. (developed with Prof. Dieter Felsenberg for Stop the Stoop campaign).
Download animation (MPG, 17.88 MB)
Download visual as high res. jpg (JPG, 4.68 MB)
or as tif file (TIF, 11.55 MB)
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