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Members
Chair: ML Brandi
Members: G Adib, D Agnusdei, J Bilezikian, C Bogado, M Chandran, D Chappard, R Chapurlat, B Clarke, JP Devogelaer, R Eastell, A El Magrahoui, S Ferrari, G Guglielmi, N Hamdy, F Jakob, K Javaid, J Kanis, JM Kaufman, U Liberman, G Lyritis, L Masi, P Miller, N Napoli, S Papapoulos, R Rizzoli, S Silverman, N Watts
Co-opted: M Collins, W Höglerer, W van Hul, R Oheim, E Roldan, A Superti-Fruga
Aim
To investigate skeletal rare disorders and skeletal complications in non-skeletal rare disorders
Projects
- SRD Course worldwide
- Expression of hypophosphatasia in adults
- Review on the uptake of drugs that are available for SRD in different geographical areas of the world
- Developing brochures and risk cards for various skeletal rare diseases
Skeletal Rare Disorders
Publications
Related content: Skeletal Rare Disorders
https://www.iofbonehealth.org/osteoporosis-musculoskeletal-disorders/skeletal-rare-disorders
Taxonomy of rare genetic metabolic bone disorders.
Masi, L., Agnusdei, D., Bilezikian, J. et al. and the Skeletal Rare Diseases Working Group of the International Osteoporosis Foundation.
Osteoporosis International (2015). DOI 10.1007/s00198-015-3188-9
https://link.springer.com/article/10.1007/s00198-015-3188-9
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